Jane's Rainbow: for all needing support & comfort

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 19 May 17 - 07:26 PM

Sweet dreams... to all.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 19 May 17 - 11:54 AM

Thank you for your good wishes, all passed on to Ann. 'Birthday Bash' was something of a misnomer. Once Ann has worked her way through the 'six hours behind', we'll probably go to Tomassi's in Southend-on-Sea for a leisurely lunch. Good mains & more homemade, Italian ice-cream for desert than you've ever dreamed of! She's currently unpacking...it's 16:50 our time. I think she might just make it to supper, plus an extra hour or so & then, in the words of my Dear Departed Grandmother: "Up the wooden stairs to bedfordshire".
                                          Much Love to all,
                                                                     Nigel & Ann.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 19 May 17 - 07:54 AM

Welcome home and Happy Birthday Ann xxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 18 May 17 - 08:32 PM

Um, Nigel, will the bash before or after Ann recovers from jet lag?

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 18 May 17 - 10:50 AM

welcome home happies from me! enjoy your celebration, Ann

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 18 May 17 - 08:25 AM

Say Happies Atchya for me. Partaaaay!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 18 May 17 - 05:42 AM

Ann returns home from TX tomorrow...suddenly a month is transformed into a few hours. She celebrated her birthday whilst she was away, so we're going to have a 'welcome home birthday bash' as well.
                     Love to All,
                                       Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 15 May 17 - 05:33 AM

A gentle upwards nudge. Greetings from London,
                                                                               Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Mysha
Date: 07 May 17 - 04:38 AM

Hi,

Thanks ChanteyLass. With New Moon being during the day and me working in a school there's fairly good coverage where that is concerned. (-:

Oh: "who doesn't look funny" should probably be read as "who doesn't give me funny looks". I'm rarely talking with clowns or mimes about things like this.

Bye,
                                                                Mysha

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 05 May 17 - 06:46 PM

Mysha, I'm glad your colleague was with you and able to help. May you always be with such a person when a new moon arrives!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Mysha
Date: 05 May 17 - 04:16 PM

Hi,

Yes, I guess they are panic attacks of a kind, as people with Asperger syndrome are indeed supposed to get. But since by now I know what causes them, I can mostly handle them.

E.g., I just found that something in my shopping bag had leaked a bit. On 27 days of the moon I'd wipe every item as I take it out of the bag (regardless of whether it needs it), and throw the bag in the laundry. At Full Moon, I'm likely to take a more active solution, like moving the contents of all items to other containers, so I can dump all the packaging immediately. At New Moon, I may leave the shopping bag as being impossible. (The next day, I'll rescue what I can.)

I did look into this one, but it's hard enough to find someone who doesn't look funny when I say the Full Moon influences my daily cycle. If I were to say those panic attacks Asperger literature talks about are actually New Moon-related, the reaction might for me be hard to cope with.

Anyway, not to worry: It's only once or twice a year that I notice it's New Moon from the scare I'm having, and this was a bad one, as such scares go. But thanks for the advice.

Bye
                                                               Mysha

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 05 May 17 - 08:41 AM

Mysha, panic attacks (which is what this sounds like) can be minimized or alleviated. See a good psychologist, preferably one trained in Cognitive Behavior Therapy or Prolonged Exposure Therapy -- both work.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 01 May 17 - 05:32 PM

Mysha, that sounds more than a little bit post-traumatic, that incident.
Good thing someone was with you.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 01 May 17 - 08:53 AM

In binary, Tommy is 00010010 years old. Over 10,010!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Mysha
Date: 30 Apr 17 - 05:43 PM

Hi,

Thanks, keberoxu. I think the wry wit scares some people, so, I'm happy to see it's also appreciated in some way.

I actually had one of the worst New Moon scares since years this week. Nothing medical, though: Suddenly all this clearing the house seemed completely impossible. Fortunately, one of my colleagues from work was in the house with me and she helped me stay active, though it was very confusing. All good again the next day. (-: I often wonder how other people feel a New Moon. Are any of you more panicky when it's New Moon? (Or vv., mm..)

And congratulate Tommy with his 940th septimanaversary. Or was that yesterday? I get confused with the time-zones, sometimes.

Bye,
                                                                Mysha

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 28 Apr 17 - 10:23 AM

I, too, have been away from Mudcat for longer than usual. Belated birthday wishes to Tommy.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 27 Apr 17 - 01:55 PM

Just seen the news on the chemotherapy thread looking very encouraging too .

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 26 Apr 17 - 06:16 PM

Haven't been on Mudcat for longer than usual, and just catching up. Happy Birthday to Tommy. Go Pat! Go Rap!

Many good wishes for all.

maeve, you and TL doing OK?

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 25 Apr 17 - 09:11 PM

Go for it, Tommy!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 25 Apr 17 - 08:00 PM

Just want to say, Mysha, nice to hear your wry wit in your posts. Hope you are feeling stronger and less of what one wise priest once called "the oceanic ache" inside. Keep on keeping on.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 25 Apr 17 - 09:09 AM

& from me, too.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 25 Apr 17 - 07:44 AM

A landmark birthday for Tommy in more ways than one. Love & congratulations from Nigel & Ann

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 25 Apr 17 - 07:13 AM

Wishing Tommy a very happy 18th Birthday

Wendy xxxxxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 24 Apr 17 - 12:07 PM

Pete.... wonderful.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 23 Apr 17 - 04:02 PM

Well, tommy was born 18 yrs ago today , with his own battles. He was not expected to get here , but here he us , and in good health considering his condition. We had a little thanksgiving section in this mornings service during which Becky said a few words , and I sang a song about him beck asked be only a few days ago to write..       Blessings all

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 23 Apr 17 - 06:35 AM

It's St. George's day, so for all of us fighting personal & collective 'dragons' I wish strength, perseverance & an eventual end to the conflict.
                                                                            With Love,
                                                                                             Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 22 Apr 17 - 07:42 PM

Rap, I hope your right leg treatment goes well, too.
Wendy, I hope your new locks do their job.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 22 Apr 17 - 09:34 AM

wishing you many more wonderful evenings (& days) singing

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 22 Apr 17 - 07:29 AM

Thanks Sandra, actually I sang " Live not where I love" , we had a wonderful evening
Wendy xxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 21 Apr 17 - 09:54 PM

join the chorus & SING!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 21 Apr 17 - 12:00 PM

Sending my love to all of the above, good healing thoughts to everyone in need.

Had to get new locks on the salon door this morning, some "kind sole" had tried to jemmy open the door in the middle of the night, no real damage done but made me quite cross. There have been a number of break ins in the Frinton shops over the past few weeks, very unusual but we live in unusual times don't we?

onward and upwards, going to a music session in Walton this evening, dare I sing, such a long time since I have.... but maybe

fondest love

Wendy xxxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 20 Apr 17 - 09:53 PM

And today I have my first EVLT for venous insufficiency in my legs. My right leg will be done next week. It has not stopped me from doing anything today. Not varicose veins, just the blood not returning as it oughta.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 20 Apr 17 - 07:30 PM

sending best wished to Pat, Keith & everyone

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 20 Apr 17 - 04:26 PM

Update:
Keith A of Hertford posted to his "chemotherapy" thread the other day.
His surgery schedule has been moved forward.
The operation was today.
He says when he is able, he will post.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 16 Apr 17 - 02:38 PM

Adding my amen to the above !

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 16 Apr 17 - 11:38 AM

Happy Easter to the Rapparees, and relieved to hear that this year's procedure went more comfortably than last year's.

And Keith A from Hertford, happy that you are here for Easter.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 15 Apr 17 - 11:42 AM

Glad to hear things went well, Rap. Take care of you both.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 14 Apr 17 - 09:07 PM

She's home and wandering around the house. Tomorrow the intake nurse from home health care comes. Yes, she's in pain, especially when she does something which she shouldn't. She'll be back asleep soon; she's doing that a lot just like she did last year. Now comes my part.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 14 Apr 17 - 08:37 PM

Thank you, Rap, from me, too. I'm glad the surgery went well and that the outlook is good. I hope Pat quickly recovers.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: JennieG
Date: 14 Apr 17 - 09:14 AM

Thanks for the update, Rap - will also let Sandra in Sydney know, we're at a folk festival this weekend. Pleasr pass our best wishes on to Pat for a speedy recovery.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 14 Apr 17 - 04:44 AM

Rapparee, thank you for your update. Quite how you found the time amazes me. Ann & I send our sincere best wishes for Pat to make a complete recovery, soon to return home. We are thinking of you too. The 'carer's rôle' is not without it's difficulties. Take good care...your health & strength play a significant part in the 'bigger picture'.
                                                   Sending love to you both,
                                                                                           Nigel & Ann.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 13 Apr 17 - 07:42 PM

She was out of surgery and recovery around noon; about 1 p.m. she arrived in the hospital room. She'll be there at least tonight. The surgeon said all went well and she believes that there was no spread beyond the original place. A "simple" mastectomy was done, i.e., the chest wall muscles, etc., weren't touched.

When I left she had just awakened from a nap of 90 minutes or so and the massive headache she had after surgery had abated to the point of tolerance.

Fifth bout with cancer and the first recurrence.

Going to dinner and then back to the hospital.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 13 Apr 17 - 05:49 PM

Rap, by now I hope Pat is out of surgery and doing well. Please update us at your convenience.
Pete, I'm sending early Happy Birthday Hugs to Tommy.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 13 Apr 17 - 01:00 PM

Thanks, Pete. She's in surgery right now.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 13 Apr 17 - 07:33 AM

Pete, lovely to read that you've been to Winchelsea...beautiful part of the coast. What an achievement that Tommy reaches his 18th birthday next week. Your caring, love & devotion has played a significant part in guiding Tommy through many difficult times.
                                 Sending love to you both,
                                                                         Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 13 Apr 17 - 07:20 AM

Been away at Winchelsea . Tommy still reasonably well , though we have had problems with his cathurter. Next week is his 18th , an age he was not expected to reach ! I trust Pats surgery has/is going well raparee . Sounds good for keith . Blessings all.         Pete

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 12 Apr 17 - 12:18 PM

'Hoist the sail'

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 10 Apr 17 - 11:15 AM

We know only too well the nefariously unpredictable nature of cancer. Keith's news makes very good reading. Ann & I send our sincere good wishes to Keith, his Family & the medical team who will be in attendance.
                                  With love to all concerned,
                                                                            Nigel

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 09 Apr 17 - 09:37 PM

As will I.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 09 Apr 17 - 02:37 PM

Keith A of Hertford posted what he called amazing news to his "chemotherapy" thread.

When he started the thread, he had a pancreatic cancer diagnosis, and the doctors had concluded that surgery was not an option given the progression of the cancer. That was over a year ago.

Numerous treatments later, the doctors find that much of the tumor is no longer discernible on the scan. This means they can attempt to operate.

Keith posts that the surgery is scheduled for 24 April.
I reckon that he would welcome all the well-wishes, thoughts, and prayers of anyone so inclined; I certainly send mine.