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Jane's Rainbow: for all needing support & comfort

keberoxu 02 May 19 - 02:34 PM
Donuel 29 Apr 19 - 08:01 PM
Sandra in Sydney 29 Apr 19 - 07:24 PM
ChanteyLass 29 Apr 19 - 05:05 PM
keberoxu 29 Apr 19 - 02:08 PM
frogprince 28 Apr 19 - 10:22 PM
ChanteyLass 28 Apr 19 - 09:13 PM
Rapparee 28 Apr 19 - 09:01 PM
keberoxu 28 Apr 19 - 06:16 PM
keberoxu 22 Apr 19 - 05:45 PM
Rapparee 22 Apr 19 - 09:40 AM
ChanteyLass 21 Apr 19 - 08:53 PM
keberoxu 20 Apr 19 - 09:57 PM
Rapparee 20 Apr 19 - 09:01 PM
ChanteyLass 19 Apr 19 - 10:30 PM
Rapparee 18 Apr 19 - 08:59 PM
ChanteyLass 18 Apr 19 - 08:21 PM
keberoxu 18 Apr 19 - 02:45 PM
Rapparee 17 Apr 19 - 09:24 PM
keberoxu 17 Apr 19 - 05:51 PM
keberoxu 16 Apr 19 - 01:46 PM
keberoxu 14 Apr 19 - 11:55 AM
Sandra in Sydney 12 Apr 19 - 08:28 PM
keberoxu 12 Apr 19 - 11:28 AM
keberoxu 29 Mar 19 - 01:11 PM
Nigel Paterson 27 Mar 19 - 12:29 PM
ChanteyLass 25 Mar 19 - 09:21 PM
Rapparee 25 Mar 19 - 08:29 PM
keberoxu 25 Mar 19 - 07:17 PM
wysiwyg 24 Mar 19 - 11:36 AM
Sandra in Sydney 24 Mar 19 - 03:55 AM
ChanteyLass 23 Mar 19 - 08:38 PM
billybob 23 Mar 19 - 06:59 PM
Nigel Paterson 23 Mar 19 - 03:39 AM
ChanteyLass 21 Mar 19 - 05:32 PM
ranger1 21 Mar 19 - 01:39 PM
ChanteyLass 20 Mar 19 - 06:45 PM
keberoxu 20 Mar 19 - 01:42 PM
keberoxu 18 Mar 19 - 04:51 PM
Pete from seven stars link 15 Mar 19 - 07:27 PM
ChanteyLass 15 Mar 19 - 06:17 PM
Nigel Paterson 15 Mar 19 - 07:20 AM
Stilly River Sage 14 Mar 19 - 10:59 PM
Rapparee 14 Mar 19 - 10:03 PM
ChanteyLass 13 Mar 19 - 11:47 PM
gnu 13 Mar 19 - 09:00 PM
gnu 13 Mar 19 - 08:31 PM
wysiwyg 13 Mar 19 - 07:51 PM
keberoxu 13 Mar 19 - 05:39 PM
keberoxu 10 Mar 19 - 12:14 PM
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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 02 May 19 - 02:34 PM

Billybob/Wendy has been absent from the Mudcat for a month or two now.
Last heard from, she was helping her daughter
get through chemo for Crohn's disease …
hope she and her loved ones are holding their own.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Donuel
Date: 29 Apr 19 - 08:01 PM

Rap I hope that your experience will merely teach you what a heart attack does not feel like. You are already atypical. Being attacked by your heart would be such a betrayal. 127 ain't bad.

Frogprince, some pithy old sayings are none the less true like "it takes a year". In a wierd way I think its good you knew a friend worth suffering for.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 29 Apr 19 - 07:24 PM

& enjoy the thought of travelling, then the trip


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 29 Apr 19 - 05:05 PM

I'm glad to read that you are healing. It takes time as you know. I think having a routine helps. Keep at it!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 29 Apr 19 - 02:08 PM

Good of you to check in, frogprince.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 28 Apr 19 - 10:22 PM

I've been hiding in the shadows on the deck for too long. I've continued to listen in on the rest of the crew, and you are in my thoughts. I think I can say that I'm healing okay, though I'm sure I haven't shed my last tear. I have a regular weekday morning routine of walking and a little workout at the city "community center" (primarily a rec center) followed by coffee with others on the same schedule. Judy initiated that while she still had the capacity, for which I'm thankful now. I put in some desk shifts at the local art gallery, as required if you have work in our local art association's section of the gallery; I usually have at least some photography up.Just now bracing myself to sign up for a 6 or 7 country look around Europe.
                Dean


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 28 Apr 19 - 09:13 PM

I hope so, too, Rapparee, and I hope they are good!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 28 Apr 19 - 09:01 PM

I do hope that the results of the stress test are available soon.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 28 Apr 19 - 06:16 PM

Gnu, Gnu, thinking of you


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 22 Apr 19 - 05:45 PM

Thinking of LilyFestre and her loved ones.

Not forgetting Wendy at billybob, and her loved ones.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 22 Apr 19 - 09:40 AM

During the Manhattan Project two scientists were working on a circular radio wave -- a long shot, but nobody knew what would be needed to make an atom bomb.

One day, the younger exclaimed, "I have it! I've diagrammed a circular radio wave!" and thrust his paper at the elder scientist.

The old man said, "You young fool! This is nothing! A naught!" and he rolled the paper into a thin tube and thrust it into a pencil sharpener, the shards falling to the floor.

Immediately they were surrounded by a large group of very angry janitors complaining about the mess.

Then a huge explosion happened and a mushroom cloud rose into the air.

And that's what happens every time you get a critical mass at ground zero.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 21 Apr 19 - 08:53 PM

I'll bet you look forward to the end of those 3 days! When your body will only contain normal stuff again!
127 when the goal is 124 doesn't sound so bad to me, but what do I know?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 20 Apr 19 - 09:57 PM

When do they contact you, Rap, with the test results?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 20 Apr 19 - 09:01 PM

So does being a Type II diabetic and going without food or drink for 10 hours. My heart rate went to 127 on the treadmill, the target was 124. Then they injected me with Technetium and a robot camera peaked into me. A break, then back to the robot camera again. I must say that I'm glad I have Medicare AND insurance.

I was told that the Technetium leaves the body in 3 days so I'm unlikely to achieve critical mass and explode as an atom bomb. Nor will I become a mutant who can tear down a city and shoot laser beams at other, annoying, drivers from my eyes. Both of these are probably good, but I would kinda like the laser beam thing.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 19 Apr 19 - 10:30 PM

Delays add stress!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 18 Apr 19 - 08:59 PM

Now it's put back to 11:30 a.m.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 18 Apr 19 - 08:21 PM

Rap, I'd get stressed if I had to look forward to a stress test. I hope it goes well.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 18 Apr 19 - 02:45 PM

Rap,
I remember your posts about examinations of your heart,
and infarct ... thinking of you.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 17 Apr 19 - 09:24 PM

I was taken by ambulance to the hospital this morning. Chest pains. Nitroglycerin, aspirin, EKGs, etc. Nothing untoward found, but I have another stress test at 8 a.m. Friday. The diagnosis was "Atypical chest pain."


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 17 Apr 19 - 05:51 PM

Hang in there, LilyFestre.
Worrying situation
and at least one of your fellow Mudcatters
is worrying right along with you.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 16 Apr 19 - 01:46 PM

Somebody is going to smack me up
for posting LilyFestre's news here,
since the news appears on a different thread.
Too bad.

It's a big deal for her to have her husband Pete in hospital.
He was there for her throughout her previous illness and recovery.

She is even spending nights at Pete's bedside,
working on charts for her work while he sleeps.
They have a child and a farm,
however she doesn't want to be away from him.

Keep LilyFestre and her family in your thoughts and prayers.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 14 Apr 19 - 11:55 AM

LilyFestre's husband Pete is in hospital.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 12 Apr 19 - 08:28 PM

best wishes, gnu


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 12 Apr 19 - 11:28 AM

Have a thought for Mudcatter Gnu
during Palm Sunday and Holy Week,
as a family commitment
has him walking
a Via Dolorosa of his own.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 29 Mar 19 - 01:11 PM

Rapparee's post, sharing that
his forehead was opened up
but no brains fell out,
has me thinking, for no obvious reason,
of H. P. Lovecraft and Cthulhu.

Sorry.

Back to your original programming ...


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 27 Mar 19 - 12:29 PM

Kind words from kind people...Thank you. Not always the norm on MC, but always the norm in this small corner of MC. Sail on, dear friends.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 25 Mar 19 - 09:21 PM

So, brains and ridge stay in? Sounds good to me!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 25 Mar 19 - 08:29 PM

The stitches came out of my forehead this morning and no brains fell out! The doctor says that I had a "calcified hematoma" that had to be pretty old because it had formed a little ridge of bone on one side. The ridge stays, as it would need to be chiseled out and we agreed that it wasn't worth doing.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 25 Mar 19 - 07:17 PM

Wendy, thinking of you and your loved ones.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: wysiwyg
Date: 24 Mar 19 - 11:36 AM

Blessings on Nigel and Ann, and above all-- blessings on Jane.

Love,

~Susan


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 24 Mar 19 - 03:55 AM

I'll third that!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 23 Mar 19 - 08:38 PM

Yes,this is a special ship. Thank you again for creating it, Nigel, and hugs to you and Ann on this special, but sad, day. Always hang on to the good times you shared with your daughter.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 23 Mar 19 - 06:59 PM

Sending love to you Nigel and Ann ,on Jane's anniversary.
Jane's Rainbow has brought so many people together, a special place of peace and calm.
It has joined so many people together who have never met in person but have shared sadness, sometimes joy, a place to share unspoken worries, deep despair,words of wisdom, but most of all friendship.
Bless you Nigel and Ann, we share your sadness today but thank you for sharing Jane with us and creating Jane's Rainbow. A very special ship


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 23 Mar 19 - 03:39 AM

Today, 23rd March is 'Jane's Day'.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 21 Mar 19 - 05:32 PM

Happy birthday, ranger1!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ranger1
Date: 21 Mar 19 - 01:39 PM

Break out the cake and candles (and bring a fire extinguisher!). It's my 50th today.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 20 Mar 19 - 06:45 PM

Thank you for asking, Keberoxu. It still needs more therapy for strength and range of motion. Many movements with that arm are awkward. I'll have another evaluation by the therapist soon and more X-rays in early April. It still aches, but gradually less and less. Some daily tasks, like getting into a coat, can still be amusing!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 20 Mar 19 - 01:42 PM

ChanteyLass, how's that there shoulder? Hope it's better!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 18 Mar 19 - 04:51 PM

Now Sandy Paton's widow Caroline has passed away peacefully.
She was known and loved by so many Mudcatters,
and again it is to the bereaved
that my sympathy goes out.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 15 Mar 19 - 07:27 PM

Sorry to hear about Amos , and my best wishes also to AKheneton on his loss .


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 15 Mar 19 - 06:17 PM

Oh, so sad.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 15 Mar 19 - 07:20 AM

Amos was known to me in name only, but it was obvious he was loved & respected. If I may, I would like to add my sincere condolences to his Family & Friends.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Stilly River Sage
Date: 14 Mar 19 - 10:59 PM

Between cancer and a severe head injury it was a matter of time, but in the end to have so little!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 14 Mar 19 - 10:03 PM

Amos has died.

I believe we will all be needing a little comfort and support.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 13 Mar 19 - 11:47 PM

Oh, that is good news about Amos!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 13 Mar 19 - 09:00 PM

March 13, 2019
Journal entry by Janie Endres — 4 hours ago

Hello All,

A bit of an update regarding Amos, provided with his permission. He says to say he would post himself but his 'puter is on the blink. He also won't know, until his computer is fixed, how well he can manage the keyboard as fine motor skills are still a work in progress.



He is at home and is continuing recovery efforts from his severe concussion. To those of us around him, he progresses by leaps and bounds. To Amos, the progress seems frustratingly slow. In-home speech, occupation and speech therapy have been discontinued and there is serious slogging through bureaucracies going on to get outpatient therapies scheduled. His speech is clear, and he has made very significant progress on syntax, inflection, etc. Struggles sometimes to find the right words to use - but this amazingly articulate human being is already more articulate than most of us, even if not back to his prodromal levels.



He is able to sing - pretty well in imho, but not up to his own standards, and working at making some strumable chords on the guitar. Still needs a walker because the internal gyroscope still ain't working right, but there definitely continues to be improvement. Fine motor skills have a ways to go, but again, definitely continuing to improve.

Although fatigue can be an issue, and rest and naps are very important to promote healing after brain injury, he enjoys company and outings. He thinks he is a pain to take somewhere because of the walker, but, believe me folks - that is his imagination. He needs the walker for balance, not because his legs are injured and can't bear full weight. It is a piece of cake to chauffeur him to a local restaurant or coffee shop for an outing, as long as the steps can either accomodate a walker, or there is a sturdy handrail - though, for local folks, I would not recommend lunch at the Saratoga Grill at this point, with their full flight of stairs.



In terms of the cancer, he had a full scan a few weeks ago, and the cancer is 'stable.' No new metastases. Of the already present metastatic lesions, half have shrunk a little and half have grown a little. At present, focus continues to be on recovering from the concussion. Any decisions regarding further experimental treatments or clinical trials are deferred.

There some ways that local friends can help support the family.



1. Take Amos or Daly out to lunch, breakfast or dinner. Separately, so they get a break from one another. If taking Daly out, good idea to make sure Tucker is home, or that some one is there to keep Amos company. My schedule is somewhat flexible, so feel to call me to see if I can come visit Amos if taking Daly out. 919-259-5079. I do work part time so some pre-planning is helpful. Amos doesn't generally need assistance, but he knows he is still physically vulnerable and it can be a bit nerve-wracking to him to be home alone. If staying with Amos, take a book, in case he decides a short nap is in order, and make clear you are perfectly comfortable not being entertained if he needs to nap.

2. Invite yourself over for a meal with the family, and either bring the meal with you, or fix it in their kitchen. Lunch or dinner, or even a brunch!

3. Bring a meal over that can be heated up. Check with them first so they don't get overloaded with brought in food. Most local folks know that Amos loves meat and potatoes, especially beef or buffalo, or ham, but is not averse to sauted chicken breasts with a savory glaze. No seafood for Amos, but Daly loves sushi!

4. Amos has a lot of doctor appointments right now. Check with Daly to see if you might be able to take him to an appointment so she can have some time at home alone.

Once outpatient therapies get scheduled, they will probably occur on a routine schedule, and I will set up the planner (see above links under ways to help) for folks who have time during the day who might be free to take him to PT/OT/ST.

5. Just go visit! If you are a musician, bring your instrument, hand Amos his guitar, and go to work!



6. I'll reiterate - get Daly out of the house, just make sure some one is staying back at the house.



Thanks for reading, and thanks for caring.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 13 Mar 19 - 08:31 PM

Just got off the phone with Amos. He sounds pretty good. Give him a call, eh? Maybe wait until later but... you can always ask Daly first... should ask first.

daly.jessup@gmail.com


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: wysiwyg
Date: 13 Mar 19 - 07:51 PM

Amos' sister Deda started the thread, but the update was from Janie, who lives near Amos.

~S~


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 13 Mar 19 - 05:39 PM

And there has been an Amos update,
posted by his sister.
Amos is getting impatient with his progress however
those around him are not only supportive but pleased
at how well he is doing.
And a medical checkup
showed that the cancer
for which he initially had surgery
is stable, and until a change manifests
then his treatment can continue as it is.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 10 Mar 19 - 12:14 PM

A thought for long-time Mudcat participant
akenaton. He can't post below the line these days.
But it's been less than a year
since he became a widower.
I keep him in my thoughts and prayers.


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Mudcat time: 13 October 8:06 PM EDT

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