Mudcat Café message #4017781 The Mudcat Café TM
Thread #166881   Message #4017781
Posted By: Tattie Bogle
07-Nov-19 - 08:19 PM
Thread Name: BS: hearing loss, tinnitus
Subject: RE: BS: hearing loss, tinnitus
I have Meniere's Disease, which comes with the triad of tonnitus, hearing loss and dizziness/blance problems. The tinnitus varies from hour to hour and day to day: perhaps unusually, compared sith the usual textbook descriptions, it is at its quietest when there is no external noise happening: as soon as there is any or I put my hearing aids in, I get "recruitment" and it ramps up into a massive barrage of sound which interferes with hearing speech: I can hear people talking at what should be perceptible volume, but it just sounds like a foreign language. Music is also badly affected in that my sense of pitch, which used to be near perfect, is now badly awry. I still try to keep playing piano and button accordion in the 2 ceilidh bands I'm in: so long as I hit the right notes, it should sound OK to others, tho it can sound mighty strange to me: luckily neither of them require tuning before each playing! I have stopped going to a lot of the sessions and concerts I used to enjoy because of it.
My hearing has dropped rather drastically over the last 2 years, and I have had spells of being more or less housebound for fear of having dizzy turns while out. I had a bad fall thanks to one of these back in August: probable fractured coccyx and definite loss of dignity!
The only things that keep me sane are having a good supportive family and friends, and thinking of other friends who are going through life-threatening or terminal illness: at least mine is not that, and helps me keep a sense of perspective.