Mudcat Café message #3565180 The Mudcat Café TM
Thread #142631   Message #3565180
Posted By: VirginiaTam
08-Oct-13 - 12:10 PM
Thread Name: Jane's Rainbow: for all needing support & comfort
Subject: RE: Jane's Rainbow: for all needing support & comfort
Yay Spaw. Wish my news was as good. But at least it is not the Big C.

Saw a new RA consultant nurse today. My inflammation markers are sky high. Everywhere she touched screamed with pain. She is sending the paperwork for funding for me to start Golimumab. Will take 6 to 7 weeks to come through at which time Healthcare at Home will contact me to deliver meds and arrange for nurse to visit and teach me how to self inject.

She said something that no other doctor or nurse has told me. That the heart pain and problems I am having may well improve with the new meds as immune system is not merely attacking joints. It attacks organs too. Which I knew from reading but as no one seemed to want to listen to my complaints about anything other than joints, I just let it go. Assumed it was not showing in bloods that I was as sick as I felt.

So looking forward to end of November to see if this new treatment will make me feel better.