Mudcat Café message #3507176 The Mudcat Café TM
Thread #142631   Message #3507176
Posted By: catspaw49
22-Apr-13 - 02:28 PM
Thread Name: Jane's Rainbow: for all needing support & comfort
Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
Some better around here each day. I think this is a well deserved break of sorts but don't forget to update and keep us posted on yourself and/or friends and relatives you have talked about here.

For me...........

Second round of Vidaza started today. Last week my hemoglobin had risen to 9.6 and I had my usual Aronesp shot. After feeling so damn bad it was nice to feel a bit better. I looked back at some past records and found that a year ago my Hemoglobin had been at 9.8 during a routine physical (there is nothing routine when you have all the weird crap going on that I do) I was at 9.8 back then so this was also some good news to have at least gottten back there. I have felt pretty good all week and my color is greatly improved.

Today I met with the Doc after the lab tests and found that I would NOT get an Aronesp shot today because you can't take Aronesp if your Hemoglobin is above 10.3-4 and mine is at 10.5! Can you believe this shit? 10.5! I wanted to kiss everybody I met. My white count was within range for the first time, my red count was up, my platelets while still low actually doubled. I will do this week on the Vidaza regimen and be in for regular blood work next monday. As Vidaza kills red blood cells as it works, I figure two things. First I might hopefully get through this round better by starting higher and second, this seems to actually enhance the Aronesp and the weekly shots are effective at least more than before.

So now we get through this week and see where we are next Monday and the follwing Mondays for 4 weeks and evaluate again prior to round three. I don't want to get too excited. Like I said, I know this game is a loser but I'm going to keep playing the board as long as I can.

Thanks to all of you for the UPS! Great folks on a great thread. Let's hear from some others if you have any news not posted.