Mudcat Café message #3493021 The Mudcat Café TM
Thread #142631   Message #3493021
Posted By: catspaw49
21-Mar-13 - 11:04 AM
Thread Name: Jane's Rainbow: for all needing support & comfort
Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
Just a brief up date as several have asked via PM and e-mail.......The Aronesp shots are not working all that well and after 2 pints 2 weeks ago I may need 2 more by next week. So next week I am also scheduled to start on the Vidaza. Its is also used for chemo but also works on the Myeloplastic Dysplasia, a pre-Leukemia condition. I'm hoping for good result although it may take awhile to do the job.

As my hemoglobin count drops below 8.0 I really begin to feel it as it makes the blood less able to carry the oxygen to the the lungs. There are a couple of strange side effects that kick in as well when the hemo drops. I look forward to whatever good the Vidaza brings in raising the hemo level and reducing the need for transfusions. The need to be in Columbus for a week for the Vidaza shots daily I do not look forward to but we'll see what we can do to change that at a later date.

Next week I may be posting less or more....hard to tell...LOL....depends on how I sleep at Connie's house and how tired I am if I don't ! LOL.......Altogether though, it could be a whole lot worse so hold me a good thought and I will do the same for all of you.

Nigel and Ann......You are of course first and foremost in my mind and in the hearts and minds of most of this group. I don't make that up nor do they just say that here. You know those PM's and e-mails I mentioned? ALL, repeat ALL of those folks said it too, ie., "the first thread I open" which is a common comment of many. Much Love.........