Mudcat Café message #3486457 The Mudcat Café TM
Thread #142631   Message #3486457
Posted By: catspaw49
04-Mar-13 - 10:41 PM
Thread Name: Jane's Rainbow: for all needing support & comfort
Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
Aw well Janie.....they're not. I have gone 7 weeks without a transfusion (I was going only 2) of 2 or more pints. The Aronesp is working but below what it needs to be doing. Last Wednesday I was 8.0 on Hemoglobin so I knew it wasn't going to be long. The good thing is that the Doctor felt it has taken hold some butwe will be starting the Vudaza the3 end of the month.

I was still hanging in Sunday but I sstarted calling to get the transfusions scheduled this morning and I have 2 pints going in tomorrow morning. We had to make another 100 mile round trip to Columbus to have the blood draw for the type and crossmatch and we'll do it again tomorrow. Of course Karen drives that route daily but all these extra trips are getting pretty old. We have great insurance through Karen's job at the hospital, buy we need to use their Docs which are ALL in Columbus. Hard on Karen, hard on the car, hard on the wallet...........But whaddaya gonna do?   Damn Aronesp is $2700.00 per shot and I can assure you the chemo will be equally bad. I'm hoping after awhile we can work something out to get the chemo shot closer to home but I'm not holding my breath.

Gotta' go to bed so I can get up and shower at 5.......Forgive any typos........