Mudcat Café message #3445078 The Mudcat Café TM
Thread #142631   Message #3445078
Posted By: catspaw49
30-Nov-12 - 07:05 PM
Thread Name: Jane's Rainbow: for all needing support & comfort
Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
Most of my post from above seems to be missing but its on the Catspaw thread as well so I'll transfer it back here. I put it in here first because this thread has been so important to many of us....

Regarding this thread and the anemia/breathing problem.................I had a bone marrow biopsy two weeks ago to see if there was a reason there for this anemia which is causing the breathing problem. As it turns out, there is!

I have some lazy-ass bone marrow which ain't keeping up with the needed supply. Mostly all the things we associate with Leukemia. At this point it ain't. The condition is called Myeloplastic Dysplasia Syndrome. The good news is that it is a pre-cancerous diagnosis and may or may not become Leukemia at some point in the future. The lesser news is that if it does it is a type that does not respond well to most of the known treatments.

We are starting weekly injections to stimulate the marrow which obviously needs a swift kick in the ass. We'll see how that goes first and move on from there. My hemoglobin and platelets are better than they were but still very low. I'm breathing better and doing better overall but I look forward to hopefully boost my red blood cell output with the shots. It will probably take awhile to see/feel the effect of those. Hopefully there will be some!!!

Biggest problem right now is the trip to Columbus (100 mile round trip) which will be weekly. My back has been bothering me since that 2 month stint in the hospital a couple of years back following the botched appendectomy. The trip gets uncomfortable for me plus it is another 100 miles on the car and the gas. So I need to get some more info then talk to the insurance folks about a closer location for the shots or home health care to do them.