Mudcat Café message #2821675 The Mudcat Café TM
Thread #126345   Message #2821675
Posted By: Bat Goddess
26-Jan-10 - 10:13 AM
Thread Name: BS: Curmudgeon's Medical Woes - Winter 2010
Subject: RE: BS: Curmudgeon's Medical Woes - Winter 2010
I'm realizing though all of this exactly how important it is to NOT be a passive patient. Either the patient (Tom) or the advocate (me) must fight for every bit of information and the right to input on treatment, 2nd opinions, etcet etcet -- absolutely every aspect of dealing with the medical establishment. Especially since there seems to be no communication between various care providers. It's exhausting but it can affect quality of life or even life itself.

Today he has an appointment with the doctor responsible for his incarceration and antibiotics. Tomorrow he's having a modified stress test. Modified because for years he's refused them -- no one seems to come out of a stress test except in worse shape than going into it. Tom's mother was fine until her stress test -- that caused a stroke and it was all downhill from there.

This is a strange day. Not only will I be unable to visit Tom either before or after work, but I have no doctors that need to be contacted or harassed by phone. The weather is perfect for if we'd had to go to Boston for Tom's surgery -- I'm not even keeping the woodstove going during the day and I don't need to bring in any more firewood before starting a fire after I get home around 9 tonight.

Almost sort of "normal" -- except for not having Tom home and having to say "goodnight" via telephone.